Just Wait and See

A blog about hope, despite the disabilities.

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    Juxtaposed. The Story Continues
  • 121

    121
  • Listen for Singing

    Listen for Singing
  • The Scariest Moment of My Life – By: Sarah Moore

    The Scariest Moment of My Life – By: Sarah Moore

Three Of Us Together

June 5, 2019 By Ellen Moore 1 Comment

Today marks six months since Catherine died. As I tucked Sarah in last night, she said, “It’s gone so fast, Mom.” I agree. It feels like this hole in our lives just opened up a few days ago in our lives. To think that it’s been six months is simply a challenge to digest. It’s…

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Juxtaposed. The Story Continues

April 12, 2019 By Ellen Moore 4 Comments

Nurses came in to tell us they were going to need the room, so they were going to move us to another one where we could spend as much time with Catherine as we’d like. I remember thinking how nice that was and at the same time thinking, “Of course they need the room –…

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121

April 7, 2019 By Ellen Moore 2 Comments

April 5th marked four months since Catherine died. It was 121 days exactly. She spent exactly 121 days in the NICU after she was born. Anyone else find that interesting?

Listen for Singing

February 26, 2019 By Ellen Moore 3 Comments

Years ago, when my parents got divorced, my Mom had me make something for her. She never told me why or gave me any backstory, and I never asked. She had an old piece of slate broken into approximately the shape of North Carolina and she asked me to ink a quote on the gritty…

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The Scariest Moment of My Life – By: Sarah Moore

February 1, 2019 By Ellen Moore 12 Comments

Sarah had to write a personal narrative at school. She’s in 5th grade and came home to tell me she had written about what happened the day Catherine died. The below is published with her permission and all my love. “Give CPR!” I heard my mom yell at 5:25 in the morning. The first thought…

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The News

January 17, 2019 By Ellen Moore 4 Comments

My doctor friend arrived shortly thereafter. Seeing her interrupted my thoughts and pleas to God that THIS was not supposed to be the way our story ended. I saw her walking down the hall and recall thinking “Wow, she got dressed nice!” I guess I expected a “roll out of bed and hop in the…

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The Hospital

January 9, 2019 By Ellen Moore Leave a Comment

In the ambulance, I kept kicking myself. Why didn’t I print her medical history last night? I was lazy. Serves me right. I had updated it. All the info was there – just for emergencies like this. But I didn’t feel like printing it, and I honestly didn’t think we’d have an emergency so close…

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What Happened?

January 4, 2019 By Ellen Moore 12 Comments

So many people asked me, “What happened?” in the hours after Catherine died. I repeated the story over and over again – to paramedics… to doctors… to nurses… to clergy… to family… to friends… I finally got tired of it and told them I couldn’t answer that question any more. Numbness took over. Everyone describes…

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Two Weeks Today

December 19, 2018 By Ellen Moore 6 Comments

Two weeks ago, today, I was up at 5:00 AM preparing for my day like usual. Well, not exactly like usual because it’s a Wednesday, and I usually wash my hair on Wednesdays. Two weeks ago, today, I was dragging. The alarm went off and I had to work hard not to hit the snooze…

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Hi, I’m Ellen

I’m just a mom making my way, but my way is a little different. And yet, very much the same. I have a 13-year-old daughter, Catherine, who was born at 25 weeks and weighed one pound, nine ounces. Despite a very severe brain bleed, she lived and inspires me every day with all she works so hard to do... Read More…

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