Early Morning Conversation
Sarah: Cackie’s eyes are open. Me: Yay Catherine! Let’s give her claps. Sarah: It doesn’t work. Me: What doesn’t work? Sarah: Her eyes. Me: That’s right. Her eyes are broken. Sarah: Yeah… She can’t see me. And now I know…
kids
A Little Weekend Reflection
Sarah knows the word “Dadgummit!” Catherine now knows the smell of burned food – three different kinds to be precise. She knows the smell of burnt candy, burnt toast and burnt toast with gruyere cheese blackened on top. This was…
What Makes You Angry?
Years ago, I was giving a talk about Catherine’s life and how we manage to have hope through it all. At the end of the presentation, someone in the audience asked me, “What makes you angry?” “I don’t really feel…
Are We Out of the Woods?
We passed three weeks post-op on Wednesday, and on Monday, we go see the surgeon to see how Catherine is doing. She’s doing so well on the outside, it makes me wonder if the proverbial ‘other shoe’ is about to…
A Collision of Importance
“NOOOOOO!” I heard myself scream at Sarah as I saw my favorite bowl crash on the floor in four or five chunky pieces. Her defiant eyes dared me as she raised it over her head. In a millisecond, it was…
If Everybody Had a Notion
Catherine got to surf! Yep. I haven’t even ever tried surfing. I wimped out in Tamarindo, Costa Rica for some stupid reason, but my five-and-a-half year old (cuz that’s how she’d say it) got to surf when we were on…
Smiles
My mom sent me an article about a girl in Charlotte who has a rare implication from jaundice. She was getting ready to have a surgery that would create deep brain stimulation to hopefully help control her chaotic movements and…
Allergies waiting
Once again, we’ll wait and see… Catherine had a severe respiratory attack on July 5 after going out for a bit of ice-cream to close the holiday weekend. We wound up riding via ambulance to the ER. Happy Independence, huh? …