Just Wait and See

A blog about hope, despite the disabilities.

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What Dishwashing Taught Me

May 5, 2016 by Ellen Moore Leave a Comment

“Mom, what’s Catherine going to do? You said we all have to do something to contribute to the family.”

Oops! She got me. “What can I have Catherine do?” I thought quickly. “That’s a great question, Sarah. What can Catherine do?” I said to fill in some time so I could think.

This rapid exchange happened one night while we were clearing the dinner dishes from the table. We’re trying to help Sarah learn the habit of clearing the table, and I had suggested she was old enough to put her dishes all the way into the dishwasher, not just in the sink. Then I added to it and said she was old enough to put all the dishes into the dishwasher, not just hers. She had no problem with the request. She simply calculated  that if she had to do something, so did Catherine. It was a reasonable point, and proof that she views Catherine as capable of carrying her fair share. If I really believed Catherine could do anything as long as we’re a little creative about it, I realized I needed an answer for this question. And fast!IMG_3097

Plus, what 8 year old doesn’t have a powerful sense of what is fair in the world – especially when it comes to siblings and anything even remotely similar to a chore?

Sarah proceeded with her stream of consciousness giving me time to make up something quickly. My brain vacillated between excuses for why Catherine couldn’t do something to thinking about what she could actually do. I confess I felt stumped.

As Sarah said, “Mom, I’m going to wash the dishes…” I realized at least I could help Catherine put them in the dishwasher so I finished her sentence. “And Catherine can put them in the dishwasher.” Sarah seemed imminently satisfied with this plan. All I had to do was figure out how Catherine could actually do that. I just kept pressing forward.

“Well, let me get Catherine over here next to the dishwasher,” I said, knowing this would buy me a few seconds to keep thinking. Sarah happily ran the dishes under the stream of water and started piling them by the sink. “I’m a good dish-washer, aren’t I, Mom?” She continued to chatter away as I positioned Catherine’s chair by the dishwasher, still wondering what exactly was going to constitute “putting dishes in the dishwasher” and wondering if Sarah would accept it as Catherine doing her fair share.

I picked up a plate and held it to Catherine’s hand and talked about it feeling wet and cold and then put it in the spines of the dishwasher rack. “Good job, Catherine. You put the plate in the dishwasher. That’s a big help. Here comes the next one,” I said. I can actually remember how it felt because I cringed wondering, “Is Sarah going to buy any of this? Is she getting ready to say, ‘Mom, you’re actually the one doing it, not Catherine’?” I held my breath and simply kept pressing forward.

Sarah happily rinsed plates and bowls and knives and forks and let us know that she was working faster than we were and we needed to hurry up. Frankly, she was right! I started moving items into Catherine’s hand faster and soon we were sloshing some excess water around and laughing and working together to make sure all the dishes got loaded. Technically speaking, all Catherine was doing was touching each item before it went into the dishwasher. And that was enough.

It was enough simply to include her. Rather than have her sit in her chair back at the table, we simply moved her a few feet, let her touch the wet dishes, talked about the task at hand and got the job done. Moments earlier, I had been filled with doubt about how this would all work. I wondered what I could possibly do to make a difference and make the most of this opportunity. I feared an 8-year-old meltdown that would send our evening into a tailspin of frustration and whining – and not just from Sarah.

I simply kept moving forward searching for an answer. Rather than stall and ponder and critique and analyze, I took action. I let the path unfold before me, all the while watching and hoping that it would. And I learned a big lesson that I seem to need to learn over and over and over again.

When in doubt, step forward.

Filed Under: Best Of, Making a Difference Tagged With: Sarah, siblings, Sisters

The Question

November 21, 2012 by Ellen Moore Leave a Comment

“Mommy, how did Catherine get born early?”

Sarah’s little voice pierced the darkness and drifted toward my mind as we drove home in the dark of night. It’s the one I’d wondered about. The one I didn’t know how I’d answer. Most parents may wonder about the “Where did I come from?” question. I’m ready for that one and the whole sex talk to go with it. This one was different. How could I answer this particular question when I didn’t even really know the answer myself?

“Well… She just came early,” I paused. “God just had her come that way.”

It was the best I could do, and I didn’t feel like I did a very good job with it. I drove in silence for a moment, wondering what else I could have said – or could still say. How could I explain the complexities of pre-term labor to a four-year-old? How could I explain spiking a fever and running and infection? How could  I explain placenta abruption and my life and Catherine’s life being in jeopardy? The silence and darkness grew as I began to question whether God actually did do that or allowed it to happen or whether it was just random having nothing to do with God at all.

In a barely audible whisper, I heard her tiny voice from the backseat, and I wasn’t sure I could make out the words.

“What did you say?” I asked her.  I thought I had heard correctly, but I wanted to be sure.

“Mom!” She yelled in exasperation just like I imagine she will when she’s sixteen. “I’m talking to God!”

“OK.” And then I could hear her for sure.

“God, is that true?” she barely uttered aloud.

My faith that has been hiding under a rock poked its little head out to remind me that yes, he was still there.

And I realized I hoped God answered her,  “Yes.”

 

Filed Under: Best Of, Moments Tagged With: cerebral palsy, daughters, disability, faith, pre-term labor, Sarah, Sisters

My Very Best Moment

March 22, 2012 by Ellen Moore Leave a Comment

I have been telling the following story to anyone who will listen. I tell it for two reasons. First, I want to remember it forever, and I hope that by telling it over and over again, I will brand it into my brain for eternity. Second, it’s a really great story that I know people will love to hear. But something completely unexpected has arisen in my telling it.

Very few things are sweeter than the kiss of a toddler coupled with a truly adoring, “I love you.” Any parent would likely agree. Sarah did that the other day with a kiss on my cheek. And this time, she decided to add something to it. She told me to close my eyes, and she softly kissed each eyelid one by one. She kissed my right cheek again. She kissed my left. She kissed my forehead and then pulled back, studied me for a short moment  to figure out what else she could kiss, and then moved in to kiss my chin. She kissed my lips. She pulled back once more, looked at my face, giggled, and moved in to get under my chin and kiss my neck. Proud of all she’d uncovered that could be kissed on my face, she sat back nearly triumphantly and smiled. She then moved her hands around and across the space just in front of my face as if to scoop up something from the air and said, “OK Mommy, now wrap them all up and put them in your pocket so you can give them to your friends all day.” I melted.

I told this story to two colleagues later that morning and got the reaction you’d expect. They laughed. They oooh’d. They aaah’d. They agreed that was one of the most priceless toddler tales they’d heard. And I gave them each a kiss from my pocket. It was a good day.

I came home that night and told Brian. I told my Mom on the phone the next time we spoke. I told my best friend. I even told some strangers in the weeks that followed. I kept telling the story with the intention of blazing it into my brain, so I would never ever forget the sweetness and the feeling I had had in that moment. I even wondered what could possibly beat this story. It occurred to me that I might have already experienced my very best moment with Sarah, and I wanted to savor it for all eternity. Then it hit me. What was my very best moment with Catherine? What had happened that I wanted to savor for all eternity? Did we even have one? Or was it still waiting for us?

That stumped me. And my heart sank. I couldn’t think of anything.

What was my very best moment with Catherine? Did I have one? Facing that question made my stomach ache. Surely I must. But nothing came to mind immediately so I beat myself up for not spending enough time with her and not doing enough with her. I kept driving wondering what it might be or when it would happen or if it ever would happen. That was not a good day.

My stomach woke up. I felt excitement. And a picture floated to mind of when Catherine was also a toddler – possibly two or three, I’d have to look it up, and she sat on my legs and did squats. This little girl who never would walk according to the medical community sat astride my thigh and did squats with a perfectly straight back and powerful legs. Over and over and over again.

As soon as I remembered that and felt the excitement, another memory overwhelmed me. She was much younger. I was struggling to figure out how she communicated. A teacher in our home suggested I bounce her on my knee for a bit, stop, wait and see what Catherine did. I followed her guidance exactly, and Catherine arched her back. Over and over again, she arched her back whenever I stopped bouncing her. She wanted more! My little girl who was “unable to communicate,” was talking with me in her own special way.

So now I have two. Which one is our very best moment? The one I want to hold with me for all eternity? I can’t decide.

Wow.

Sisters in a pretty great moment together.

Filed Under: Best Of, Moments Tagged With: cerebral palsy, disabled kids, hope, kiss on my cheek, love, Sarah, Sisters, toddler tales

Early Morning Conversation

November 19, 2010 by Ellen Moore Leave a Comment

Sarah: Cackie’s eyes are open.

Me: Yay Catherine! Let’s give her claps.

Sarah: It doesn’t work.

Me: What doesn’t work?

Sarah: Her eyes.

Me: That’s right. Her eyes are broken.

Sarah: Yeah… She can’t see me.

And now I know what it’ll be like when I realize Sarah knows Catherine is blind.

Filed Under: Best Of, Moments Tagged With: Blind, daughters, disabled kids, kids, Sisters

Hi, I’m Ellen

I’m just a mom making my way, but my way is a little different. And yet, very much the same. I have a 13-year-old daughter, Catherine, who was born at 25 weeks and weighed one pound, nine ounces. Despite a very severe brain bleed, she lived and inspires me every day with all she works so hard to do... Read More…

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