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I’ve been thinking about death a lot lately. Most people don’t think about it – or rather what I mean is they don’t have to think about it. I’ve had to think about it since the day Catherine was born….
Hi Santa and Mrs Claus
thanks for the great big bags of toys!!!!
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We’re down to one nurse working 2 nights all week. If you didn’t do well in math, that means we have 71.42% of the week without overnight nurse coverage. I have a friend with a severely disabled child, and she…
What's Next? A Hope Hunt!
I don’t know what to write next. Normally, I hear a muse that helps me write. Yes, literally. Since we’ve come home, I haven’t heard it – or is it a she? Perhaps that’s because within days of coming home,…
Are We Out of the Woods?
We passed three weeks post-op on Wednesday, and on Monday, we go see the surgeon to see how Catherine is doing. She’s doing so well on the outside, it makes me wonder if the proverbial ‘other shoe’ is about to…

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Now that I’ve put it out there, I feel an obligation to write. I said I’d be writing more to anyone reading this and so I feel like I must make that happen. Just because I said I it was…


