Happy Mother's Day
I swear if I had known how much I would love being a Mom, I would have had kids much sooner and had several more of them. If you know anything about me though, this is a statement that is…
Mom
What Not to Say
I recently read a blog post from a woman about what not to say to a parent of a child with disabilities. I recalled thinking after I read the post – and I actually replied to it myself – that…
Let the Data Show
We’re entering another phase where instead of being a mom, I become a scientist. Instead of snuggling and hugging and cheering, we will observe and track and analyze. I don’t especially like these phases, but long ago I learned that…
A Little Weekend Reflection
Sarah knows the word “Dadgummit!” Catherine now knows the smell of burned food – three different kinds to be precise. She knows the smell of burnt candy, burnt toast and burnt toast with gruyere cheese blackened on top. This was…
Come on Mommy, Dance!
Two Mondays ago, we spent the day at AI duPont Children’s Hospital, confirming that Catherine needs surgery. Not just any surgery. A surgery where they will cut her bones on both her hips and one of her legs. A surgery…
The Observer
Am I “The Observer?” Catherine has what’s known as “stridor.” Basically, it’s a sound that comes from inflammation in her throat obstructing her airway just enough to produce a sound when she breathes. Sort of like an old man on…