Pack it?
I still remember an art project in 7th grade. I don’t have the art project; it has to live in my memory. It was my very favorite piece of all my school projects and my teacher blew it up in…
hope
What Not to Say
I recently read a blog post from a woman about what not to say to a parent of a child with disabilities. I recalled thinking after I read the post – and I actually replied to it myself – that…
I Wish I Knew
The most common question I get from people who know Catherine right now is, “How’s she doing? Is she over the pain?” I wish I knew. Most times, she seems comfortable, but frankly, she seemed comfortable even just after surgery….
Hope the Surgeon Isn't Hungry
I’m surprised by how relaxed I feel early in the morning on the day of Catherine’s really big surgery. After all the planning, prepping and praying, I feel remarkably calm. As I’m writing this, however, a little spiral of nerves…
Come on Mommy, Dance!
Two Mondays ago, we spent the day at AI duPont Children’s Hospital, confirming that Catherine needs surgery. Not just any surgery. A surgery where they will cut her bones on both her hips and one of her legs. A surgery…
Magical Experiences for Disabled Kids
Wow! Some days you’re just thankful you got up and had the stuff on your calendar that was there. Catherine didn’t have an aid on Tuesday, so I got to play that part at school. I actually love the excuse…
Daddy Fix It. With Tape!
Sarah has recently entered a “tear the page” phase with her books. It’s annoying to me, but she seems to get some sense of accomplishment from it. She’s torn many pages and Brian diligently fixes them with packing tape. Somewhere…
A Collision of Importance
“NOOOOOO!” I heard myself scream at Sarah as I saw my favorite bowl crash on the floor in four or five chunky pieces. Her defiant eyes dared me as she raised it over her head. In a millisecond, it was…
Six Years Ago – Today
Think back. What were you doing right now – exactly six years ago today? Most of you won’t even remember. A few will. I certainly do. If you were the nurse who made me promise not to be scared until…