Special Needs of the "Normal" Sibling
It happened again. Another seizure that required meds. But this one had a twist: Sarah wanted to be put to bed in the middle of it by Brian – and Brian was holding Catherine. “Daddy put you to bed,” she…
Life
Are We Out of the Woods?
We passed three weeks post-op on Wednesday, and on Monday, we go see the surgeon to see how Catherine is doing. She’s doing so well on the outside, it makes me wonder if the proverbial ‘other shoe’ is about to…
The Observer
Am I “The Observer?” Catherine has what’s known as “stridor.” Basically, it’s a sound that comes from inflammation in her throat obstructing her airway just enough to produce a sound when she breathes. Sort of like an old man on…