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Keeping Us On Our Toes
Just for fun Catherine decided to drop her blood pressure last night. Of course the staff was all over it. And they started questioning whether we would proceed today or not. They gave fluids, and BP rose so they decided…
A Post on Babble.com
Picking out a wheelchair with your daughter is a lot like picking out a prom dress — there are loads of choices, it doesn’t happen often, you imagine the time she’ll have in it and hope it’ll be magical. And…
Post-Surgery Update
Hi all, Sorry for the delay in the update. Catherine is doing quite well, but I got sick and couldn’t update last night. They did surgery with an epidural in addition to general anesthesia, so she didn’t need to be…
A Little Bummed
They just decided to start Catherine on a little Epi to try to get her BP to come back into a good range. Fluids haven’t been working enough and it bums me out a little. Her BP has been high…
Extubated!!!!
Good job team!!! Especially Catherine!

Live Like You’re Dying – In a Couple of Weeks
I’ve been thinking about death a lot lately. Most people don’t think about it – or rather what I mean is they don’t have to think about it. I’ve had to think about it since the day Catherine was born….






