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Hope the Surgeon Isn't Hungry
I’m surprised by how relaxed I feel early in the morning on the day of Catherine’s really big surgery. After all the planning, prepping and praying, I feel remarkably calm. As I’m writing this, however, a little spiral of nerves…
Get Up and Try Try Try
We’re trying to get Catherine off the ventilator today. She’s not breathing as consistently as she needs to so it’s taking longer than I hoped. It’s amazing to me what a frustrating cycle this creates in me. Maybe her, too….

Live Like You’re Dying – In a Couple of Weeks
I’ve been thinking about death a lot lately. Most people don’t think about it – or rather what I mean is they don’t have to think about it. I’ve had to think about it since the day Catherine was born….
Rough Travels Lead to a Great Day
Three closed elevators! I thought Brian and I would both blow a gasket today as we headed to Lousiana Museum of Modern Art. Thankfully, he was in a “Let’s make it work” mood and started taking Catherine on the escalator. …
Homeward Bound
We are in the car driving south toward home. It’s surreal! It’s all happened so fast and I just want every single person who helped us get through this – from docs and nurses to family and friends as well…
Home stretch
They’re closing!!!! We will see surgeon in about 45 mins or so and I will send an update as soon as I can afterward. Not 100% out of the woods but oh so close….


