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Quick Update Before Bed
Catherine has had a relatively uneventful day which you would think would be good. It’s been frustrating though because I was really hoping to be able to tell you they pulled the tube. She breathed on her own with the…
Notice Anything?
Notice anything different in this picture? That’s Sarah in the bed and Catherine in the wheelchair! Yep. She got out of bed today and sat in a reclined position in a hospital wheelchair. The goal was 30 minutes and she…
Rough Travels Lead to a Great Day
Three closed elevators! I thought Brian and I would both blow a gasket today as we headed to Lousiana Museum of Modern Art. Thankfully, he was in a “Let’s make it work” mood and started taking Catherine on the escalator. …
Better Safe Than Sorry
Dr Miller decided to close early because Catherine’s blood pressure dropped too low. She is fine now after some meds to bring it back up and she is heading to the ICU. They will spend the weekend investigating why it…
And Now – Mom Breathes
What a remarkable feeling to have everyone under one roof after such an intense hospitalization! And thanks so much to whoever decorated our door and mailbox!!!! Super cool! And sometime Brian snuck away and found awesome yellow butterfly sheets. Hope…
Sleep Helps Everything
There were a few moments early in the morning when all the chimes from the dozens of monitors on all the kids in the ICU all stopped at the same time. Those pauses amid the constant chimes were more noticeable…


