Extubated!!!!
Good job team!!! Especially Catherine!
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School
Catherine has been attending UCP’s Delrey school this summer. So far, she’s doing great, and we’re really happy with it, especially in comparison with the county school for special needs kids. They’ve been able to feed Catherine and to help…
T-shirts
Just had rounds and they asked if we had any other questions. We told them these T-shirts pretty much covered it!
Rough Travels Lead to a Great Day
Three closed elevators! I thought Brian and I would both blow a gasket today as we headed to Lousiana Museum of Modern Art. Thankfully, he was in a “Let’s make it work” mood and started taking Catherine on the escalator. …
Look Closely
I cried. I didn’t expect it. I had been told some parents do. And I didn’t really think I would be one of them. I was just so surprised at how much taller Catherine is now! Look closely at this…
Live Like You're Dying – In a Couple of Weeks
I’ve been thinking about death a lot lately. Most people don’t think about it – or rather what I mean is they don’t have to think about it. I’ve had to think about it since the day Catherine was born….
I Wish I Knew
The most common question I get from people who know Catherine right now is, “How’s she doing? Is she over the pain?” I wish I knew. Most times, she seems comfortable, but frankly, she seemed comfortable even just after surgery….