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A Good First Real Day
We slept 14!!! hours! And then we set off to find the National Museum – one of the country’s shining jewels apparently. And there is also a National Galley – not to be confused… though we did. It didn’t matter…
School
Catherine has been attending UCP’s Delrey school this summer. So far, she’s doing great, and we’re really happy with it, especially in comparison with the county school for special needs kids. They’ve been able to feed Catherine and to help…
And Now – Mom Breathes
What a remarkable feeling to have everyone under one roof after such an intense hospitalization! And thanks so much to whoever decorated our door and mailbox!!!! Super cool! And sometime Brian snuck away and found awesome yellow butterfly sheets. Hope…
Early!
Here we go! Thanks to all of you for the prayers good wishes hugs and help. It may be awhile before I can update because cell doesn’t work in the H very much. Know she is in good hands and…
Are We Out of the Woods?
We passed three weeks post-op on Wednesday, and on Monday, we go see the surgeon to see how Catherine is doing. She’s doing so well on the outside, it makes me wonder if the proverbial ‘other shoe’ is about to…
Spit in the Wind
A resident named the blog post today. They were holding rounds this morning and she was talking about how little Fentanyl Catherine is on and said something like, “For most kids, this would be spit in the wind, but because…


