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Get Up and Try Try Try
We’re trying to get Catherine off the ventilator today. She’s not breathing as consistently as she needs to so it’s taking longer than I hoped. It’s amazing to me what a frustrating cycle this creates in me. Maybe her, too….
Early Morning Conversation
Sarah: Cackie’s eyes are open. Me: Yay Catherine! Let’s give her claps. Sarah: It doesn’t work. Me: What doesn’t work? Sarah: Her eyes. Me: That’s right. Her eyes are broken. Sarah: Yeah… She can’t see me. And now I know…
New Year's Resolutions
Each year at this time, I wrestle with new resolutions. Part of me is giddy at the prospect of starting fresh and being better in many ways. Part of me gets undone at the thought of making promises to myself…
Magical Experiences for Disabled Kids
Wow! Some days you’re just thankful you got up and had the stuff on your calendar that was there. Catherine didn’t have an aid on Tuesday, so I got to play that part at school. I actually love the excuse…
Post-Surgery Update
Hi all, Sorry for the delay in the update. Catherine is doing quite well, but I got sick and couldn’t update last night. They did surgery with an epidural in addition to general anesthesia, so she didn’t need to be…
Just Breathe
The vent is out!!! Now just have to watch closely to be sure she holds her own. I have been waiting to send a pic after the tube came out. Enjoy!!! Plan is back to the OR in Wed.



Praying for all of you, especially sweet Catherine! May the Lord guide the surgeon’s hands perfectly – and give you peace in the waiting. xo