The A Team
The best girls in the world surrounded by some of the best docs in the world. And yes – this was OUTSIDE today. Life is good.
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Two Differences
Two things are immediately different in Copenhagen. One, the family discussed; the other hasn’t been mentioned by anyone yet. First – it’s astounding how many people smoke here! I’ve gotten used to that being rare and it’s definitely taken some…
Early!
Here we go! Thanks to all of you for the prayers good wishes hugs and help. It may be awhile before I can update because cell doesn’t work in the H very much. Know she is in good hands and…
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Just Breathe
The vent is out!!! Now just have to watch closely to be sure she holds her own. I have been waiting to send a pic after the tube came out. Enjoy!!! Plan is back to the OR in Wed.
Good Report
Catherine saw her buddy, Dr. Miller, today for her post-op visit. He said she looks great and he released her to do nearly everything. No twisting yet. No lying on a therapy ball. No ATV rides. No trampoline bouncing over…
Live Like You're Dying – In a Couple of Weeks
I’ve been thinking about death a lot lately. Most people don’t think about it – or rather what I mean is they don’t have to think about it. I’ve had to think about it since the day Catherine was born….
Ellen, I have been following your posts all this time…and I have prayed for you…for Catherine…for your family. While I haven’t written until now, know that I am continuing to wish you all the best! You have all been through so much…and have come so far! Catherine looks great!!!
I just heard this song and saw the video…check it out…it reminds me of you.
Blessings, Sharon
http://m.youtube.com/watch?v=B9RZ4V34WhY&desktop_uri=%2Fwatch%3Fv%3DB9RZ4V34WhY
Related to the video/song link…Oh, and Catherine may not “see” you the way fully sighted children do, but you have your own special ways of connecting with each other, and the message of the song-what we’ll do for our children-resonates clearly and strongly in your family! You all amaze me!!!