The A Team
The best girls in the world surrounded by some of the best docs in the world. And yes – this was OUTSIDE today. Life is good.
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Heading Home
So much more to write about the trip and so little tIme to write. Yesterday we filled the day with amusements from Bakken, the world’s oldest amusement park. Not much for Catherine to do other than smell the amusement…
A Good First Real Day
We slept 14!!! hours! And then we set off to find the National Museum – one of the country’s shining jewels apparently. And there is also a National Galley – not to be confused… though we did. It didn’t matter…
Quick Update Before Bed
Catherine has had a relatively uneventful day which you would think would be good. It’s been frustrating though because I was really hoping to be able to tell you they pulled the tube. She breathed on her own with the…
A Little Bummed
They just decided to start Catherine on a little Epi to try to get her BP to come back into a good range. Fluids haven’t been working enough and it bums me out a little. Her BP has been high…
Better Safe Than Sorry
Dr Miller decided to close early because Catherine’s blood pressure dropped too low. She is fine now after some meds to bring it back up and she is heading to the ICU. They will spend the weekend investigating why it…
Ellen, I have been following your posts all this time…and I have prayed for you…for Catherine…for your family. While I haven’t written until now, know that I am continuing to wish you all the best! You have all been through so much…and have come so far! Catherine looks great!!!
I just heard this song and saw the video…check it out…it reminds me of you.
Blessings, Sharon
http://m.youtube.com/watch?v=B9RZ4V34WhY&desktop_uri=%2Fwatch%3Fv%3DB9RZ4V34WhY
Related to the video/song link…Oh, and Catherine may not “see” you the way fully sighted children do, but you have your own special ways of connecting with each other, and the message of the song-what we’ll do for our children-resonates clearly and strongly in your family! You all amaze me!!!