The A Team
The best girls in the world surrounded by some of the best docs in the world. And yes – this was OUTSIDE today. Life is good.
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Good Report
Catherine saw her buddy, Dr. Miller, today for her post-op visit. He said she looks great and he released her to do nearly everything. No twisting yet. No lying on a therapy ball. No ATV rides. No trampoline bouncing over…
Relaxing in the Park
The girls set off an adventure today. After staying up with Catherine for 5 nights and pushing about 80 pounds of luggage all over the streets of Copenhagen, Billund and Fredericksburg, Brian needed a day of sleep. So I took…
School
Catherine has been attending UCP’s Delrey school this summer. So far, she’s doing great, and we’re really happy with it, especially in comparison with the county school for special needs kids. They’ve been able to feed Catherine and to help…
Hope the Surgeon Isn't Hungry
I’m surprised by how relaxed I feel early in the morning on the day of Catherine’s really big surgery. After all the planning, prepping and praying, I feel remarkably calm. As I’m writing this, however, a little spiral of nerves…
Surgery time
Catherine is scheduled for 7:45 am tomorrow. She will be first and only scheduled case for Dr Miller. Thanks all for prayers and support. Love and hugs, Ellen
Tired. Late. Stable.
Hi everyone. Thanks so much for your prayers and support. Today was long and hard. Imagine sitting in the waiting room for what you expect to be about 5-6 hours. We’d brought stuff to do – computers, games, magazines, books….
Ellen, I have been following your posts all this time…and I have prayed for you…for Catherine…for your family. While I haven’t written until now, know that I am continuing to wish you all the best! You have all been through so much…and have come so far! Catherine looks great!!!
I just heard this song and saw the video…check it out…it reminds me of you.
Blessings, Sharon
http://m.youtube.com/watch?v=B9RZ4V34WhY&desktop_uri=%2Fwatch%3Fv%3DB9RZ4V34WhY
Related to the video/song link…Oh, and Catherine may not “see” you the way fully sighted children do, but you have your own special ways of connecting with each other, and the message of the song-what we’ll do for our children-resonates clearly and strongly in your family! You all amaze me!!!