Do One Thing
I woke up this morning excited to write about the gratitude I felt because day by day we were experiencing a full week of nurses despite the challenges of staffing. So many reached out after my last post, and I…
Gratitude
In all things, give thanks. These posts show our gratitude big and small.
And Now – Mom Breathes
What a remarkable feeling to have everyone under one roof after such an intense hospitalization! And thanks so much to whoever decorated our door and mailbox!!!! Super cool! And sometime Brian snuck away and found awesome yellow butterfly sheets. Hope…
Homeward Bound
We are in the car driving south toward home. It’s surreal! It’s all happened so fast and I just want every single person who helped us get through this – from docs and nurses to family and friends as well…
Good Morning!
Catherine had a good night last night. Her BP dropped some so they gave her some fluids. I have a feeling this is our new normal and the BP alarm is less alarming to me now. Well – somewhat. More…
Sleep Helps Everything
There were a few moments early in the morning when all the chimes from the dozens of monitors on all the kids in the ICU all stopped at the same time. Those pauses amid the constant chimes were more noticeable…
Tired. Late. Stable.
Hi everyone. Thanks so much for your prayers and support. Today was long and hard. Imagine sitting in the waiting room for what you expect to be about 5-6 hours. We’d brought stuff to do – computers, games, magazines, books….
Special Education
We just spent 4.5 hours in a special education mediation meeting. I can’t write about the details now, but let me just say that if I had all the money in the world, I would make it my singular mission…