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Live Like You’re Dying – In a Couple of Weeks
I’ve been thinking about death a lot lately. Â Most people don’t think about it – or rather what I mean is they don’t have to think about it. I’ve had to think about it since the day Catherine was born….

Juxtaposed. The Story Continues
Nurses came in to tell us they were going to need the room, so they were going to move us to another one where we could spend as much time with Catherine as we’d like. I remember thinking how nice…
Sleep and Breathe
Catherine has proven the theory of the infamous Dr Levenbrown. It is, in fact, possible to sleep and breathe at the same time! Dr L made this astute statement during rounds when they discussed extubating yesterday. Catherine had a good…
Surgery time
Catherine is scheduled for 7:45 am tomorrow. She will be first and only scheduled case for Dr Miller. Thanks all for prayers and support. Love and hugs, Ellen
School
Catherine has been attending UCP’s Delrey school this summer. So far, she’s doing great, and we’re really happy with it, especially in comparison with the county school for special needs kids. They’ve been able to feed Catherine and to help…
Are We Out of the Woods?
We passed three weeks post-op on Wednesday, and on Monday, we go see the surgeon to see how Catherine is doing. She’s doing so well on the outside, it makes me wonder if the proverbial ‘other shoe’ is about to…



Prayers with all of you.