The A Team
The best girls in the world surrounded by some of the best docs in the world. And yes – this was OUTSIDE today. Life is good.
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I Wish I Knew
The most common question I get from people who know Catherine right now is, “How’s she doing? Is she over the pain?” I wish I knew. Most times, she seems comfortable, but frankly, she seemed comfortable even just after surgery….
Relaxing in the Park
The girls set off an adventure today. After staying up with Catherine for 5 nights and pushing about 80 pounds of luggage all over the streets of Copenhagen, Billund and Fredericksburg, Brian needed a day of sleep. So I took…
Post-Surgery Update
Hi all, Sorry for the delay in the update. Catherine is doing quite well, but I got sick and couldn’t update last night. They did surgery with an epidural in addition to general anesthesia, so she didn’t need to be…
Get Up and Try Try Try
We’re trying to get Catherine off the ventilator today. She’s not breathing as consistently as she needs to so it’s taking longer than I hoped. It’s amazing to me what a frustrating cycle this creates in me. Maybe her, too….
A Good First Real Day
We slept 14!!! hours! And then we set off to find the National Museum – one of the country’s shining jewels apparently. And there is also a National Galley – not to be confused… though we did. It didn’t matter…
Rough Travels Lead to a Great Day
Three closed elevators! I thought Brian and I would both blow a gasket today as we headed to Lousiana Museum of Modern Art. Thankfully, he was in a “Let’s make it work” mood and started taking Catherine on the escalator. …
Ellen, I have been following your posts all this time…and I have prayed for you…for Catherine…for your family. While I haven’t written until now, know that I am continuing to wish you all the best! You have all been through so much…and have come so far! Catherine looks great!!!
I just heard this song and saw the video…check it out…it reminds me of you.
Blessings, Sharon
http://m.youtube.com/watch?v=B9RZ4V34WhY&desktop_uri=%2Fwatch%3Fv%3DB9RZ4V34WhY
Related to the video/song link…Oh, and Catherine may not “see” you the way fully sighted children do, but you have your own special ways of connecting with each other, and the message of the song-what we’ll do for our children-resonates clearly and strongly in your family! You all amaze me!!!