The A Team
The best girls in the world surrounded by some of the best docs in the world. And yes – this was OUTSIDE today. Life is good.
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Rough Travels Lead to a Great Day
Three closed elevators! I thought Brian and I would both blow a gasket today as we headed to Lousiana Museum of Modern Art. Thankfully, he was in a “Let’s make it work” mood and started taking Catherine on the escalator. …
Superlatives from Copenhagen
Now that the laundry is done – well, at least clean and in the hampers if not folded and put away – and we’re over the jet lag, we’ve taken a couple of nights to reflect on our journey. Thought…
Better Safe Than Sorry
Dr Miller decided to close early because Catherine’s blood pressure dropped too low. She is fine now after some meds to bring it back up and she is heading to the ICU. They will spend the weekend investigating why it…
Live Like You’re Dying – In a Couple of Weeks
I’ve been thinking about death a lot lately. Most people don’t think about it – or rather what I mean is they don’t have to think about it. I’ve had to think about it since the day Catherine was born….
Tired. Late. Stable.
Hi everyone. Thanks so much for your prayers and support. Today was long and hard. Imagine sitting in the waiting room for what you expect to be about 5-6 hours. We’d brought stuff to do – computers, games, magazines, books….
Test post
i have been having difficulty posting. I am trying to see if this works. Briefly – this is a photo of Sarah’s Lego creation. It’s a girl in a raft selling helmets to people on the river who need them….
Ellen, I have been following your posts all this time…and I have prayed for you…for Catherine…for your family. While I haven’t written until now, know that I am continuing to wish you all the best! You have all been through so much…and have come so far! Catherine looks great!!!
I just heard this song and saw the video…check it out…it reminds me of you.
Blessings, Sharon
http://m.youtube.com/watch?v=B9RZ4V34WhY&desktop_uri=%2Fwatch%3Fv%3DB9RZ4V34WhY
Related to the video/song link…Oh, and Catherine may not “see” you the way fully sighted children do, but you have your own special ways of connecting with each other, and the message of the song-what we’ll do for our children-resonates clearly and strongly in your family! You all amaze me!!!