The A Team
The best girls in the world surrounded by some of the best docs in the world. And yes – this was OUTSIDE today. Life is good.
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The Routine
We’ve developed a nice little routine for bedtime. At times, I’m frustrated by the length of it, but mostly, I think it serves us well. To put it in the terms Sarah knows: Jammies Teeth Prayers Hugs Books Elmo chair…
The News
My doctor friend arrived shortly thereafter. Seeing her interrupted my thoughts and pleas to God that THIS was not supposed to be the way our story ended. I saw her walking down the hall and recall thinking “Wow, she got…
Juxtaposed. The Story Continues
Nurses came in to tell us they were going to need the room, so they were going to move us to another one where we could spend as much time with Catherine as we’d like. I remember thinking how nice…
Hope the Surgeon Isn't Hungry
I’m surprised by how relaxed I feel early in the morning on the day of Catherine’s really big surgery. After all the planning, prepping and praying, I feel remarkably calm. As I’m writing this, however, a little spiral of nerves…
Three Of Us Together
Today marks six months since Catherine died. As I tucked Sarah in last night, she said, “It’s gone so fast, Mom.” I agree. It feels like this hole in our lives just opened up a few days ago in our…
Get Up and Try Try Try
We’re trying to get Catherine off the ventilator today. She’s not breathing as consistently as she needs to so it’s taking longer than I hoped. It’s amazing to me what a frustrating cycle this creates in me. Maybe her, too….
Ellen, I have been following your posts all this time…and I have prayed for you…for Catherine…for your family. While I haven’t written until now, know that I am continuing to wish you all the best! You have all been through so much…and have come so far! Catherine looks great!!!
I just heard this song and saw the video…check it out…it reminds me of you.
Blessings, Sharon
http://m.youtube.com/watch?v=B9RZ4V34WhY&desktop_uri=%2Fwatch%3Fv%3DB9RZ4V34WhY
Related to the video/song link…Oh, and Catherine may not “see” you the way fully sighted children do, but you have your own special ways of connecting with each other, and the message of the song-what we’ll do for our children-resonates clearly and strongly in your family! You all amaze me!!!